hi all,

sorry i*ve not updated my blog since the new year but i*m so busy going out, rolling about, sitting and playing with my toys there*s no time.

The big news is I went outside for the first time in over six months last week and I really liked it.

I am beginning to enjoy some proper food from a spoon along with having lots of milk so i*m  growing so fast i*ll need a big boys bed soon!

I can turn the pages of my book, play the piano, lip read and sit all by myself unaided.

Luke playing Piano Concertos Nos. 1-4; Rhapsody on a Theme of Paganini

I also spending 10 hours a day on a portable ventilator which is good because I*ll need to be able to do that to come home and see NuNu.

The bad news is that I must stop flirting with all the nurses.

Some pix to follow I promise!